Improving support and the decision making process - User feedback

We know from independent evaluation that mihealth allows patients to take control of information on their own terms and is an effective and successful solution to the problem of informed choice as it is seen from the patient’s perspective.

Watch the video about Karen Hopkins, Breast Cancer patients experience of using mihealth.

Feedback from a range of mihealth users.

"It was empowering"

Well it was empowering because two days before I saw my consultant I rang the nurses and I gave her two pages of questions that had come up in the course of me reading things, of finding things, what if this? Does this apply to me and what happens if?

"Local information very useful"

I think the information about the actual hospital, that was more interesting to me. What was I going to go through? Information about the hospital, who was I going to come across?

"A best friend to go to"

It is good to have something that is there, that you can treat as an extra friend, almost like a best friend that you can go to that’s quite intimate and discrete and that is a source of information and just for you.

"I found the answer to a problem"

No-one could tell me what could cause it so I found it useful to go onto mihealth and to find out about Lymphoedema and I found that much better, well your GP probably couldn’t tell you that.

"Healthcare team contacts very useful"

Also then there’s the consultants. mihealth just sort of reminds you what their names are. Because you get in a bit of a panic, you know thinking, ‘Oh dear, who did I see?’ You can actually see it written down.

"Making medical terminology simple"

mihealth did help, especially the glossary section, which I thought was very good, because there’s a lull with all the terminology that’s used. You seem to just know and go, ‘Oh, OK I know what that means there but forget what it is the next >> day.